My update after the second surgery is a bit more complicated then I wish I could have given you. The surgery went well and was highly necessary, they gave me 2 bloodtransfusions. However after the surgery it has become clear that what we feared has become reality which means my lumbar spine is instable as well. This means that once again I can only control my eye movements, sit, walk and breathe when my lumbar spine is stabilised and put in a hollow position.
Every single thing I have has been objectively measured, with the changing of the position of my spine both when I’m awake (in my bad position versus my good position with traction) versus when I was intubated and under sedation. Meaning that there is absolutely no way I have any control over what happens. The only thing which we don’t understand yet is how it is possible. But we still have time and a very good team full of people who never stop studying and work with their full hearts and spirit. Without them I would have left this earth.
I also have compressed veins in my chest which later will have to be decompressed.
This week I have to recover, regain strength and lots of tests will follow.
No steps will be rushed. Every surgery I have had until now has been worth it and has had the effect it needed to have but given the complexity of the case we needed to take everything one step at a time. Both my surgeon, the entire team and myself make all considerations extremely carefully but where there is no choice, we need to do what is necessary and we will all make the best out of it.
My body has always been complicated, weird and extreme. However it is also incredibly resilient, despite everything strong and my spirit is high, positive and I will never give up. Therefor I believe in my power and the power and ability of my body to recover.
The picture I made before going into the second surgery, didn’t want to make you miss out on the gala gowns they give you here😆
At the moment I see stars🤣 I will translate this as soon as possible with the help of my sister, and finally write something about the most beautiful dance video I woke up to♥️
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