Hello everyone, this is an update from myself♥️
I was admitted to the ICU on the 22nd of March. I arrived in Barcelona already in a very bad state, my neck had only 1 specific spot left in which it could be stabilized; this meant holding my head only a millimeter to the right, left, up or down from that spot I went into severe and dangerous symptoms.
But once here I kept decreasing extremely radically. It became harder and harder to find that 1 spot resulting in non-stop convulsions and choking with a complete cut-off from my airway.
My 1st surgery was at 27th of March. Friday until sunday they kept me asleep, but then they woke me up because of infection risk. My body didn’t tolerate any medicinal food so there was no way to get nutrients inside. Due to Easter Holidays it was impossible to get the necessary surgical team before Wednesday.
They had to tie my head and legs to the bed in various positions because everytime they touched me they couldn’t find that spot again. No movement meant absolutely no movement. They gave me sedation but due to the EDS I react differently to medication and was awake and aware throughout these days.
Make no mistake: the hands that did all the wrapping and taping were the hands of an Angel. He’s my doctor, he saved my life by doing that and he had no other option. He’s everything I prayed for only then so much more. Creativity in the hands of the right person saved my life.
The surgery showed the extremity of my instability and compression of vertebral arteries. It went very well and saved my life. After the surgery I was in a very bad shape, it was complicated to stabilize me the first days. Today I can say I’m recovering. It stopped the convulsions, the choking, allowed me to talk, swallow (although I do need to relearn it and regain strength; I’m at 1 yoghurt a day now spread out over the day, but it’s the little things that count!!) and relieved the pressure in my head.
The second surgery will be on 12th of April, it’s to stabilise my thoracic spine with traction. That’s to allow me to breathe in an upright position, see in an upright position and walk. I’ll be in the hospital until then.
Yesterday, with a lot of help, I could turn around in the bed for the first time, allowing me to lay on the side!! It was a big step😊
I want to talk to you all personally but I’m not able to yet, I don’t know how to thank you, your goodness and kindness keeps me going. I love and miss you and you confirmed my believe in light over darkness. That’s why I wanted to use all my strength to talk to you in once. Please know that I will get to you personally but it’s still very difficult and I need to recover to get through the 12th.
Reactie plaatsen
Reacties