🦋 Update last two weeks by Joany

Some images of the last 2 weeks.
I feel blessed to be in the right hands and I love that I can be myself, until now my strength has always been used against me.
Besides that the next surgery will allow me to sit (which I can now do in only 1 specific spot or with a traction device for several minutes), breathe normally upright, walk and control my eye movements, it will also help me to swallow.
We learned that during the first surgery my surgeon had to make some concessions in the placements of the screws because I was in such a bad shape and this is why I’m having these swallowing issues now and can only eat baby portions with everything getting stuck in my throat (I thought I was just too weak😋). However changing the position of my thoracic spine affects everything which hopefully will lead to improvement.
Also my left elbow will be checked today because it has been blocked and very painful for a week now. I can stretch my arm to always the same point and it doesn’t go any further which hasn’t shown any improvement.
I’m focussing on regaining my strength by getting the rest my body needs and trying real hard to get as much food in as possible.
As brutal as it can be I’m also finding joy in the process, there are always new ways to be found and new challenges to focus on. I just want to soak it all in and turn it into something good.

No matter how positive I am, I still have a long way to go and it would be great if you could help me to keep sharing my story. You truly all make me so happy and make my heart overflow with gratitude.

https://gofund.me/accf6dce 

*The reason my legs were tied to the bed as well was because of my tethered cord; due to the tethered cord in my lumbar spine the position of my legs also affected the instability in my cervical spine.
That’s also why my surgeon had to do these 2 surgeries at once; he had to release the tethered cord because without doing that first he couldn’t reach the amount of traction my neck needed.