Dear people, thank you all very much for all your support and compassion. It means a lot to us. I can't describe to you what the past few days have been like. Something happens and you deal with it and then move on. Joany became sicker and sicker and every time we tried to make her life as pleasant as possible and find a solution. This search and powerlessness is a story in itself. The trip to Barcelona was our last hope. We have heard that they cannot diagnose here that they would be too weak to return home. It was also exciting to think that we rationally saw that we would have a good chance here. We did not expect how things would proceed, but neither did the doctor and his team expect this. I never underestimated the seriousness of the situation, but I never let it dominate, but here there was no escaping it. In the ICU she tries to stabilize her for days with her cervical collar in her hand so that she does not suffocate. 24/7 next to her bed to prevent them from moving due to minimal touching. And the last day/night before the operation the hours passed and Joany asking every so often what time it was and then saying: Do you think we'll make it? And after 3:00 she said: Then we'll make it!! I knew that. Waking up after the operation and her legs not being able to move and her left arm not being right, that's another story in itself. Here too you are not prepared. You are so happy that she is still alive, but then the ground is literally and figuratively pulled out from under you. Then Joan's optimism comes around the corner again and she says: I can feel my legs so it will be fine, I will learn to walk again. My arm, that's a different story, I don't know if it will turn out okay. Now we are almost ready for the 2nd operation that will hopefully get her sitting and walking again. Given the poor condition she is in and what we can expect, it will not be down to optimism and perseverance. Joany always sees the sun shining and we as a family will always support her and with the help of all of you this is possible. Maybe a bit of a long story, but I left out a lot. The candle is lit and we go to the operating room with confidence. 🙏
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